About this project and how it is checked

Who makes this site

This site is made by David Jeyachandran.

It explains research into slowing, stopping or reversing Parkinson's, for people with Parkinson's, their families and the people who care for them. It does not sell anything and carries no adverts.

What it covers

It covers treatments that try to slow, stop or reverse Parkinson's. It also covers the discoveries that explain what drives it. It leaves out medicines that only ease symptoms. It also leaves out new ways to diagnose Parkinson's, unless other work builds on them.

Everything comes from 346 research landmarks. Each landmark is one discovery or one trial, written up in its own file with its sources. Every page that mentions a trial links to it under "Details and sources".

Where the facts come from

Facts are checked against the first place they were reported. That means journal papers and trial registries, such as ClinicalTrials.gov. It also means news from the companies and universities that run the trials. Websites like Wikipedia are used only to find leads.

When a detail cannot be confirmed from a source, the landmark says so under "Not yet verified". We never fill a gap from memory.

How it is kept up to date

Every landmark shows the date it was last checked. Every page shows the range of dates for the facts on it.

We aim to check trials with results still to come against their registries every month. When a result arrives, the landmark is updated first, and every page that uses it changes with it.

Each approach has a one-line summary written by a person. If the trial results behind a summary change, the page says "Summary under review" until someone has read it again.

How we write about results

We use the same words for results everywhere, and every result has an icon as well as a colour.

• Did not work The trial did not show the treatment slowed Parkinson's, or it was stopped before it could.
• Mixed or early results Some signs, but not enough to know. Often a small or early trial.
• Passed this stage Safe enough, or showed enough, to test further. It does not mean it works.
• Result due The trial is running. The date is the one the trial team expects.
• Replaced by a newer approach The idea moved on to a better version, which is shown instead.

We say "did not work" plainly. We avoid hype words. Dates for results to come are expected, not promised, because trials often report late.

What this site is not

This site explains research. It is not medical advice. It does not recommend any treatment or any trial. Talk to your neurologist or Parkinson's nurse before changing any treatment.

Who has checked it

The page text has been written to be read by anyone. It is waiting for review by a neurologist or Parkinson's nurse, and by people with Parkinson's and their carers. This section will name the reviewers when that is done.

Report an error

If you find a mistake, please tell us using the error report form. Say which page it is on and, if you can, where the right information can be found. We correct errors as soon as we have checked them.

Using the data

The research landmarks and the text of this site can be reused under this licence: CC BY 4.0. Researchers can download the data from the research area.

See also our privacy notice.